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	<title>Comments on: What I know now</title>
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	<link>http://segullah.org/daily-special/what-i-know-now/</link>
	<description>Mormon women blogging about the peculiar and the treasured</description>
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		<title>By: sue-d</title>
		<link>http://segullah.org/daily-special/what-i-know-now/#comment-86880</link>
		<dc:creator>sue-d</dc:creator>
		<pubDate>Wed, 09 Jul 2008 01:32:27 +0000</pubDate>
		<guid isPermaLink="false">http://segullah.org/?p=634#comment-86880</guid>
		<description>Bek, thank you for your honesty.</description>
		<content:encoded><![CDATA[<p>Bek, thank you for your honesty.</p>
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		<title>By: Leisha</title>
		<link>http://segullah.org/daily-special/what-i-know-now/#comment-86739</link>
		<dc:creator>Leisha</dc:creator>
		<pubDate>Tue, 08 Jul 2008 02:39:38 +0000</pubDate>
		<guid isPermaLink="false">http://segullah.org/?p=634#comment-86739</guid>
		<description>I understand and appreciate your feelings so much.  I especially appreciated this comment from &quot;jendoop&quot;...&quot;Fighting ourselves to be what we want NOW. We are so impatient, perhaps scared we’ll die tomorrow and not be the person we wish we were.&quot;  Wow, so true.  That is me in a nutshell.

I can see that you have the highest expectations for yourself...you know what you are capable of achieving.  You know you will get there.  I think it is important to feel all the conflicting emotions you are having and not rush through them because of how you think you are supposed to feel.  In my past I&#039;ve tried too hard to skip to the &quot;healed, whole and healthy&quot; portion of growth/acceptance without fully dealing with the &quot;frustrated, exhausted, overwhelmed&quot; parts first.  It just doesn&#039;t work.  So, I think you are doing the right thing in being honest with yourself about how you are feeling on each step of your journey. It&#039;s healthy in my opinion.

P.S.  What kinds of things make you feel good to have people say to you?  I always tend to compliment a baby or child with special needs the same way I would compliment any child...&quot;oh she is so beautiful, etc.&quot; and kind of avoid the topic of special needs all together.  Teach us the appropriate and comforting things you appreciate hearing...especially in casual social situations where you aren&#039;t good friends with someone, but they want to acknowledge your child.</description>
		<content:encoded><![CDATA[<p>I understand and appreciate your feelings so much.  I especially appreciated this comment from &#8220;jendoop&#8221;&#8230;&#8221;Fighting ourselves to be what we want NOW. We are so impatient, perhaps scared we’ll die tomorrow and not be the person we wish we were.&#8221;  Wow, so true.  That is me in a nutshell.</p>
<p>I can see that you have the highest expectations for yourself&#8230;you know what you are capable of achieving.  You know you will get there.  I think it is important to feel all the conflicting emotions you are having and not rush through them because of how you think you are supposed to feel.  In my past I&#8217;ve tried too hard to skip to the &#8220;healed, whole and healthy&#8221; portion of growth/acceptance without fully dealing with the &#8220;frustrated, exhausted, overwhelmed&#8221; parts first.  It just doesn&#8217;t work.  So, I think you are doing the right thing in being honest with yourself about how you are feeling on each step of your journey. It&#8217;s healthy in my opinion.</p>
<p>P.S.  What kinds of things make you feel good to have people say to you?  I always tend to compliment a baby or child with special needs the same way I would compliment any child&#8230;&#8221;oh she is so beautiful, etc.&#8221; and kind of avoid the topic of special needs all together.  Teach us the appropriate and comforting things you appreciate hearing&#8230;especially in casual social situations where you aren&#8217;t good friends with someone, but they want to acknowledge your child.</p>
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		<title>By: Shellie</title>
		<link>http://segullah.org/daily-special/what-i-know-now/#comment-85324</link>
		<dc:creator>Shellie</dc:creator>
		<pubDate>Tue, 01 Jul 2008 06:24:45 +0000</pubDate>
		<guid isPermaLink="false">http://segullah.org/?p=634#comment-85324</guid>
		<description>I would so talk with you about this in the nursing lounge at church:)  One thing I do know from the people I know with Downs is what you witnessed with Janet.  They are all  missing the mean gene.  They are so loving.  I was just discussing it with a DS mom recently, he is perfect in a way none of us will never be in this life.  Hopefully your daughter will help you learn that trait more while you help her survive the other stuff.  I think you&#039;re doing great so far.</description>
		<content:encoded><![CDATA[<p>I would so talk with you about this in the nursing lounge at church:)  One thing I do know from the people I know with Downs is what you witnessed with Janet.  They are all  missing the mean gene.  They are so loving.  I was just discussing it with a DS mom recently, he is perfect in a way none of us will never be in this life.  Hopefully your daughter will help you learn that trait more while you help her survive the other stuff.  I think you&#8217;re doing great so far.</p>
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		<title>By: liz</title>
		<link>http://segullah.org/daily-special/what-i-know-now/#comment-85243</link>
		<dc:creator>liz</dc:creator>
		<pubDate>Mon, 30 Jun 2008 16:32:31 +0000</pubDate>
		<guid isPermaLink="false">http://segullah.org/?p=634#comment-85243</guid>
		<description>&quot;A social butterfly to be sure. &quot;  from then on two big fat mommy tears developed and rolled down my cheeks until the last sent.

very well written personal thoughts.

thank you for sharing/ trusting us with them.</description>
		<content:encoded><![CDATA[<p>&#8220;A social butterfly to be sure. &#8221;  from then on two big fat mommy tears developed and rolled down my cheeks until the last sent.</p>
<p>very well written personal thoughts.</p>
<p>thank you for sharing/ trusting us with them.</p>
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		<title>By: Ana</title>
		<link>http://segullah.org/daily-special/what-i-know-now/#comment-84476</link>
		<dc:creator>Ana</dc:creator>
		<pubDate>Wed, 25 Jun 2008 19:51:27 +0000</pubDate>
		<guid isPermaLink="false">http://segullah.org/?p=634#comment-84476</guid>
		<description>Bek, I have loved reading about your feelings here and echo others&#039; praise for your openness and willingness to share.

Something just struck me about the way your words were put together - I think every part of Grace is who she really is - the parts that are typical and the parts that are not. There&#039;s nothing that could take that away, you know? I think it&#039;s wonderful that you look for strengths that may help her integrate into the world of the typical around her.</description>
		<content:encoded><![CDATA[<p>Bek, I have loved reading about your feelings here and echo others&#8217; praise for your openness and willingness to share.</p>
<p>Something just struck me about the way your words were put together &#8211; I think every part of Grace is who she really is &#8211; the parts that are typical and the parts that are not. There&#8217;s nothing that could take that away, you know? I think it&#8217;s wonderful that you look for strengths that may help her integrate into the world of the typical around her.</p>
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		<title>By: ECS</title>
		<link>http://segullah.org/daily-special/what-i-know-now/#comment-84437</link>
		<dc:creator>ECS</dc:creator>
		<pubDate>Wed, 25 Jun 2008 13:51:56 +0000</pubDate>
		<guid isPermaLink="false">http://segullah.org/?p=634#comment-84437</guid>
		<description>Hi, Rebecca - Thanks for sharing your experience with us here. Your children are so blessed to have you as their mother.   Please do check back in now and then to let us know how you and little Grace are doing.  Best wishes to you and your family.</description>
		<content:encoded><![CDATA[<p>Hi, Rebecca &#8211; Thanks for sharing your experience with us here. Your children are so blessed to have you as their mother.   Please do check back in now and then to let us know how you and little Grace are doing.  Best wishes to you and your family.</p>
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		<title>By: Emily M.</title>
		<link>http://segullah.org/daily-special/what-i-know-now/#comment-84371</link>
		<dc:creator>Emily M.</dc:creator>
		<pubDate>Wed, 25 Jun 2008 03:32:58 +0000</pubDate>
		<guid isPermaLink="false">http://segullah.org/?p=634#comment-84371</guid>
		<description>Bek, thanks for writing these posts. I&#039;ve been reading them, and thinking, if I were in your shoes, I would resent the role of special needs advocacy too. I would just want to learn to enjoy my child. For me, I think that would be all I could wrap my head around for a long time.

Thank you again for your honest, thoughtful posts.</description>
		<content:encoded><![CDATA[<p>Bek, thanks for writing these posts. I&#8217;ve been reading them, and thinking, if I were in your shoes, I would resent the role of special needs advocacy too. I would just want to learn to enjoy my child. For me, I think that would be all I could wrap my head around for a long time.</p>
<p>Thank you again for your honest, thoughtful posts.</p>
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		<title>By: tracy m</title>
		<link>http://segullah.org/daily-special/what-i-know-now/#comment-84346</link>
		<dc:creator>tracy m</dc:creator>
		<pubDate>Wed, 25 Jun 2008 00:22:12 +0000</pubDate>
		<guid isPermaLink="false">http://segullah.org/?p=634#comment-84346</guid>
		<description>Bek, the more I know you, the more I love you. Opening yourself like this, allowing others so see inside- you are an amazing woman.

I can&#039;t wait to meet Gracie. She&#039;s going to be an amazing woman someday, too- Hopefully she&#039;ll have a touch of your pluck and your zest and your honest, open, strong spirit.</description>
		<content:encoded><![CDATA[<p>Bek, the more I know you, the more I love you. Opening yourself like this, allowing others so see inside- you are an amazing woman.</p>
<p>I can&#8217;t wait to meet Gracie. She&#8217;s going to be an amazing woman someday, too- Hopefully she&#8217;ll have a touch of your pluck and your zest and your honest, open, strong spirit.</p>
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		<title>By: bek</title>
		<link>http://segullah.org/daily-special/what-i-know-now/#comment-84345</link>
		<dc:creator>bek</dc:creator>
		<pubDate>Wed, 25 Jun 2008 00:20:59 +0000</pubDate>
		<guid isPermaLink="false">http://segullah.org/?p=634#comment-84345</guid>
		<description>Thanks Tiffany for your kind words too. You got it right. Ironically, after not being pregnant for years and adopting two kids, being pregnant is about the LAST thing I ever thought I would be.  To put it mildly, so the pregnancy itself took some adjustment. In fact, I would say it was more of an adjustment dealing with being pregnant than it was dealing with the DS, but seriously, how many posts can one person do??? ;-)

As for the termination/excommunication thing, I did speak to my bishop and he told me that it would have to go to church court, but in the case where mom is healthy and baby is healthy with reasonable expectation of life (not to mention we are financially able to do it, etc, etc) it was something that would have to be talked about.   I know that excommunication isn&#039;t always automatic with a termination, but in our case it pretty much was the thought, especially since we had the option of having the baby and placing her if we didn&#039;t feel we could raise her (and believe me, there are LISTS of people willing to take kids with T21).   

I think it is one of those grey areas that are on a case by case basis. In our case, the baby was fine (she is super healthy now too... very strong and getting HUGE) and we were able to do it... thanks for that though, I don&#039;t want to give the wrong idea.

Off to feed the kids. We are feeling the effects of all the forset fires, it smells like a barbeque outside which makes me want to bbq... have a good week every one.</description>
		<content:encoded><![CDATA[<p>Thanks Tiffany for your kind words too. You got it right. Ironically, after not being pregnant for years and adopting two kids, being pregnant is about the LAST thing I ever thought I would be.  To put it mildly, so the pregnancy itself took some adjustment. In fact, I would say it was more of an adjustment dealing with being pregnant than it was dealing with the DS, but seriously, how many posts can one person do??? <img src='http://segullah.org/wp-includes/images/smilies/icon_wink.gif' alt=';-)' class='wp-smiley' /> </p>
<p>As for the termination/excommunication thing, I did speak to my bishop and he told me that it would have to go to church court, but in the case where mom is healthy and baby is healthy with reasonable expectation of life (not to mention we are financially able to do it, etc, etc) it was something that would have to be talked about.   I know that excommunication isn&#8217;t always automatic with a termination, but in our case it pretty much was the thought, especially since we had the option of having the baby and placing her if we didn&#8217;t feel we could raise her (and believe me, there are LISTS of people willing to take kids with T21).   </p>
<p>I think it is one of those grey areas that are on a case by case basis. In our case, the baby was fine (she is super healthy now too&#8230; very strong and getting HUGE) and we were able to do it&#8230; thanks for that though, I don&#8217;t want to give the wrong idea.</p>
<p>Off to feed the kids. We are feeling the effects of all the forset fires, it smells like a barbeque outside which makes me want to bbq&#8230; have a good week every one.</p>
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		<title>By: Tiffany</title>
		<link>http://segullah.org/daily-special/what-i-know-now/#comment-84337</link>
		<dc:creator>Tiffany</dc:creator>
		<pubDate>Tue, 24 Jun 2008 23:08:08 +0000</pubDate>
		<guid isPermaLink="false">http://segullah.org/?p=634#comment-84337</guid>
		<description>I could be wrong about this, but I don&#039;t think an abortion automatically carries with it an excommunication sentence. But perhaps you mentioned this because of conversations with your bishop or loved ones. Like I said, I don&#039;t know everything about how that works. There are certain cases in which abortion is justified and not condemned.

Michelle, I thought in context that Bek was specifically referring to the thrusting part as being pregnant with a child she did not choose. Yes, she did choose to have her little girl. But the role of what it means to be a parent to a special needs still can be thrust upon a person--the expectations of family, a community, congregation, society, etc. In taking upon herself the role of mother to a special needs child, whatever she feels about it, there are a multitude of people who have expectations of how she will fulfill that responsibility. That has been demonstrated well here.  

Just because we take upon ourselves a role, doesn&#039;t mean that we won&#039;t struggle with conflicting feelings what the role is and how we are to perform it. And once those feelings are resolved, it doesn&#039;t mean that they are resolved forever. Truthfully, much of what I have read in the two posts by Bek is a pretty poignant description of someone going through the grieving process.

Those conflicted feelings are feelings whether they are popular or not. Unexpressed, they can be emotionally-thwarting.

Again, Bek thank you for your honesty in sharing your feelings. Even though I am not in the same situation, the insights you have shared have really helped me in some things I am experiencing.</description>
		<content:encoded><![CDATA[<p>I could be wrong about this, but I don&#8217;t think an abortion automatically carries with it an excommunication sentence. But perhaps you mentioned this because of conversations with your bishop or loved ones. Like I said, I don&#8217;t know everything about how that works. There are certain cases in which abortion is justified and not condemned.</p>
<p>Michelle, I thought in context that Bek was specifically referring to the thrusting part as being pregnant with a child she did not choose. Yes, she did choose to have her little girl. But the role of what it means to be a parent to a special needs still can be thrust upon a person&#8211;the expectations of family, a community, congregation, society, etc. In taking upon herself the role of mother to a special needs child, whatever she feels about it, there are a multitude of people who have expectations of how she will fulfill that responsibility. That has been demonstrated well here.  </p>
<p>Just because we take upon ourselves a role, doesn&#8217;t mean that we won&#8217;t struggle with conflicting feelings what the role is and how we are to perform it. And once those feelings are resolved, it doesn&#8217;t mean that they are resolved forever. Truthfully, much of what I have read in the two posts by Bek is a pretty poignant description of someone going through the grieving process.</p>
<p>Those conflicted feelings are feelings whether they are popular or not. Unexpressed, they can be emotionally-thwarting.</p>
<p>Again, Bek thank you for your honesty in sharing your feelings. Even though I am not in the same situation, the insights you have shared have really helped me in some things I am experiencing.</p>
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